Resources By Disability

 

Special Needs Local Resource Directory

It is our hope that this directory helps you find some resources and community services that will support your family members with special needs. SEA200 does not have the ability to assess the competence of any of the following listings.  It is up to each individual to question and investigate those listings that you are interested in using.  Don’t forget to check for licensing, fees and health insurance acceptance as needed.  SEA200 does not endorse any of the following.  Any feedback is appreciated and kept confidential. Please contact us at SEA200.org.

 

Organizations, support groups and Web sites by disability

 

APRAXIA  Chicagoland Apraxia Network

(Of the Childhood Apraxia of Speech Association); (630) 435-5845; www.apraxia-kids.org

Anonline source for reliable and comprehensive information about childhood apraxia of speech for families and professionals. This site has downloadable brochures, advice, links and resources.

 Windy City Online Apraxia Discussion Group

http://groups.yahoo.com/group/windycityapraxia/

 

ATTENTION DEFICIT DISORDER/ HYPERACTIVITY

 ADDitude Magazine

www.additudemag.com

Online version of magazine for adults and parents living with attention deficit disorders. Includes back issues, feature articles and subscription form.

 

Attention Deficit Disorder Association

Phone: (484) 945-2101; Fax: (610) 970-7520; www.add.org

 

Attention Deficit/Hyperactivity Disorder Support

www.ADHDsupport.com

National resources for persons with Attention Deficit Disorder

 

CHADD National Association

Phone: (800) 233-4050; Fax: (301) 306-7070; www.chadd.org

Children and Adults with ADD/ADHD

 

Child Development Institute

www.childdevelopmentinfo.com

Suggested classroom interventions for children with ADD and L/D

 

KidSource

 www.kidsource.com;

A list of best articles found about ADD and AD/HD, including those on education and disabilities, and speech and language development  Attention Deficit Disorder (CHADD) strives to improve the lives of children and adults with ADHD through advocacy, collaboration, education, support and research.

 

National Resource Center on AD/HD: A Program of CHADD

Phone: (800) 233-4050; Fax: (301) 306-6788; www.help4adhd.org

The National Resource Center on AD/HD: A Program of CHADDhas been established with funding from the U.S. Centers for Disease Control and Prevention (CDC) to be the national clearinghouse of information and resources concerning AD/HD.

 

AUTISM /ASPERGER/PDD

 Asperger’s Disorder Support Group

Contact Debbie, (708) 383-1209; For families of children with Asperger Disorder or other forms of high-functioning autism, meets monthly in the Near West suburbs.

 

The Asperger Syndrome Education Network

Email: info@aspennj.org; www.aspennj.org

A nonprofit source of information, support and advocacy for individuals and families affected by Asperger Syndrome, PDD-NOS, and high-functioning autism.

Autism Center for Excellence

Burr Ridge; (630) 455-5730; E-mail: mspalla@giantstepsillinois.org

Supports preschool through 12th grade; provides play therapy, behavior intervention, OT, PT, SLP, sensory integration, music therapy, family support, social skills training, adaptive piano training and Sibshops.  A social club is available for kids ages 10 to 18.

 

Autism Community Connection

www.autismcommunityconnection.com;

health.groups.yahoo.com/group/

autismcc

A Naperville-based online support and resource group for parents that focuses on connecting the community with families of children with special needs. Its Yahoo group provides information and support to nearly 300 families, educators and autism professionals in our area.

 

Autism Research Institute

(619) 563- 6840; www.autism.com

Information and referral clearinghouse for parents and professionals, plus quarterly newsletter.

 

Autism Service Provider & Beyond

Kiya Willis

P.O. Box 5311, Naperville, IL 60567; (630) 639-1655; E-mail: kiya.willis@gmail.com;

www.autismserviceprovider.com

Kiya is an ABA consultant, behavior specialist and developmental therapist for children and their families.  She is trained in RDI, discrete trial, TEACCH and PECS. Currently all services are provided at the client’s home, so the client must live within 30 minutes of Naperville.

 

Autism Society of America

(800) 328-8476;

www.autism-society.org

 

Autism Speaks

www.autismspeaks.org

Advocacy organization committed to raising public awareness about autism, founded by grandparents of an autistic child. Lots of resources, links, information and provider database. Recently combined with Cure Autism Now.

 

BDI Playhouse Children’s Therapy

11411 W. 183rd St., Orland Park; (708) 478-1820; bdiplayhouse.com; E-mail: info@bditherapy.com

 

Center for Speech and Language Disorders Parent Support Group

195 W. Spangler, Suite B, Elmhurst; (630) 530-8551; E-mail: info@csld.org

 

Cure Autism Now (CAN of Illinois)

www.canfoundation.org

 

DAN! Healthcare Practitioners

www.danconference.com

Defeat Autism Now! is dedicated to educating parents and clinicians regarding biomedically based research, appropriate testing, and safe and effective interventions for autism.  Physicians who believe in and practice these treatments are listed as DAN! Doctors.

 

DuPage Family Disability Network

This support group meets from 7 to 9 p.m. the second Wednesday of the month September through June at the Lisle Library, 777 Front St., Lisle. Please register for each meeting via e-mail to dfdn@dfdn.org.

 

Far West Suburban Support Group, Autism Society of Illinois

(630) 691-1270; (888) 691-1270;

E-mail: info@autismillinois.org

This group meets from 7 to 8:30 p.m. the fourth Wednesday of every month except July, August and December at the Downers Grove Public Library, 1050 Curtiss St., Downers Grove.

 

Kennedy Krieger Institute Center

for Autism and Related Disorders

Kennedy Krieger Institute is an internationally recognized facility in Baltimore dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training.

Phone: (888) 554-2080; Fax: (443) 923-9405; www.kennedykrieger.org

 

Naperville Asperger’s Parent Support Group

Contact:  Jill Holman, (630) 904-4110; E-mail: jholman@wideopenwest.com

This support group meets from 7 to 9 p.m. the first Thursday of every other month (except in summer) at Knox Presbyterian Church, 1105 Catalpa Lane, Naperville. (One block west on Gartner at the intersection of Washington Street and Gartner; park at the shopping center across the street.)

 

Naperville Asperger’s Adult Support Group

Contact: Jill Holman, (630) 904-4110;

E-mail: jholman@wideopenwest.com

This support group for adults (18 and over) who have Asperger Syndrome or related disorders meets at Knox Presbyterian Church, 1105 Catalpa Lane, Naperville. (One block west on Gartner at the intersection of Washington Street and Gartner; park at the shopping center across the street.)

 

MAAP Services for Autism and Asperger Syndrome

Phone: (219) 662-1311; Fax: (219) 662-0638; www.maapservices.org

A nonprofit organization dedicated to providing information and advice to families of More advanced individuals with Autism, Asperger syndrome, and Pervasive developmental disorder

 

Online Autism support group

This is an electronic chat group with membership by request only. To belong, please e-mail: jfs@fishstep@yahoo.com  (These folks are the former publishers of the Autism News newsletter; they simply switched to an electronic format.)

 

PDD Parent Support Group

Contact: Sharon Pike, (630) 282-2036; E-mail: samj142@aol.com

This support group meets from 7 to 8:30 p.m. the second Tuesday of every month at Easter Seals, 830 S. Addison Ave., Villa Park.  Please call or e-mail to let Sharon know how many people to expect and for meeting agenda.  The group tries to bring in a presenter each month.

 

PEP Parents Empowering Parents

Contact:  Susan Kahan, (630) 495-6800

E-mail: clubhouseslp@aol.com

This support group meets from 9:30 to 11 a.m. the fourth Wednesday of every month at Communication Clubhouse, 2901 Finley Road, Suite 102, Downers Grove.  For parents of Asperger Syndrome, non-verbal learning disorder, high-functioning autism, PDD-NOS and obsession compulsive disorder.

 

RDI Connect

www.rdiconnect.com

Home of the Relationship Development Intervention treatment program for autism spectrum disorders, the Connections Center offers training and support for parents using RDI.

 

The Schafer Autism Report

www.sarnet.org; This is an independent daily newsletter that reaches 20,000 families of autism, care professionals and researchers. It is a digest of the latest autism information and news, including research from scientific medical journals. It is nonprofit and a good resource! The cost to subscribe is $35 for 200 issues (one year) with free scholarship subscriptions available.

 

AUTISM SOCIAL SKILLS GROUPS

 Autism Community Connection

Summer Social Skills Groups

E-mail:  autismcc@yahoo.com

ACC puts together summer social skills groups that do not conflict with district 203 and 204 ESY programs.  Groups meet at various recreational/amusement locations in the area.  Each group is run by a speech pathologist and special education teacher along with speech interns from a local college.  Children supply a typical peer who helps with the social interaction.

 

Center for Speech and Language Disorders

(630) 530-8551; www.csld.com

They offer year-round social skills groups at their Elmhurst and Naperville locations.

 

The Education Center

(630) 420-7807; Offers summer social skills program

 

Giant Steps Autism Social Club

(630) 455-5730; E-mail: mspalla@giantstepsillinois.org

Giant Steps autism school has a social club for older children and young adults diagnosed with ASD.  It meets on Tuesdays from 4 to 5:15 p.m. for 10- to 14-year-olds and from 5:15 p.m. to 6:30 p.m. for 15- to 18-year-olds.  The fee is $100 for seven weeks.

 

Debra Koopman

(630) 673-5667; Offers summer social skills program

 

Mark McKee and Associates

(630) 245-1440; Offers summer social skills program

 

Milestones for Kids Success

2901 Finley Road, Suite 101, Downers Grove; (630) 792-1800; www.milestones4kids.com

Offers summer social skills programs

 

Pediatric Place

(630) 955-1940; Offers summer social skills programs

 

Rainbow Center

(630) 898-2200; Offers summer social skills program

 

Ray Graham Center

(630) 620-2222; Offers summer social skills program

 

 

CEREBRAL PALSY

 Alfred I. DuPont Hospital for Children

Wilmington, Del.; gait.aidi.udel.edu

 

 Center For Independence

Countryside, IL; (708) 588-0833

www.center-for-independence.org

Using the Conductive Education approach, their mission is to educate children with motor disabilities and to maximize functional independence.

 

Cerebral Palsy Magazine

www.cerebralpalsymagazine.com

Brand new and a great source of information

 

Childhood Stroke and Hemiplegia Connections

www.cshconnections.org

Advocacy, research, education, awareness, parent support, resources, children’s events

 

Easter Seals

630 S. Addison, Villa Park, IL  60181; (630) 620-4433, and 1323 Bond St., Naperville, IL 60540, (630) 357-9699; dfvr.easterseals.com

A good resource for a range of therapy and support services/information.

 

Kennedy Krieger Institute Phelps Center for CP & Neurodevelopmental Medicine

Phone: (888) 554-2080; Fax: (443) 932-9405; www.kennedykrieger.org

 

United Cerebral Palsy Associations (UCP)

160 N. Wacker Drive, Chicago, IL 60606; Phone: (312) 368-0380; Fax: (312) 368-0018; www.ucpa.org

Provides direct services through 130 affiliate organizations, with a Web site featuring information on parenting, education and housing, conferences, public policy and more.

 

 

DEVELOPMENTAL DISABILITIES

 The ARC of Illinois

18207-A-Dixie Highway, Homewood, IL 60430; (708) 206-1930; Fax: (708) 206-1171; www.thearcofil.org

The Arc of Illinois is committed to empowering persons with disabilities to achieve full participation in community life through informed choices. Their Web site features information on the Consumer Stipend Project (Check this out – if you have a child with a developmental disability, it helps pay for conference/workshop training expenses!!), legislation, newsletters, events, and advocacy campaign kits.

 

Best Buddies

www.bestbuddies.org

The mission of Best Buddies is to enhance the lives of people with intellectual disabilities by providing opportunities for one-to-one friendships and integrated employment.  This link shows you which area middle schools, high schools and colleges have such a program in place at their schools.  Enter your ZIP code to see schools in your region.

 

Developmental Delay Resources

www.devdelay.org

This nonprofit organization is dedicated to meeting the needs of those working with children who have developmental delays in sensory, motor, language, social, and emotional areas. DDR publicizes research into determining identifiable factors that would put a child at risk and maintains a registry, tracking possible trends. DDR also provides a network for parents and professionals, and current information after the diagnosis to support children with special needs

 

Illinois Life Span Project, Inc.

18207 Dixie Highway, Suite A; Homewood, IL, 60430; Toll free: (800) 588-7002; Voice: (708) 206-3993; Fax: (708) 206-1171; www.illinoislifespan.org

Statewide information resource and referral agency for advocacy and services for people with developmental disabilities. They have sections on parents rights, navigating the advocacy and support systems, sibling support project, etc.

 

The National Information Center for Children and Youth with Disabilities (NICHCY)

(800) 695-0285; www.nichcy.org

 

National Organization for Rare Diseases

www.rarediseases.org

 

The Sibling Support Project

www.siblingsupport.org

 

Yellow Pages for Kids with Disabilities

www.yellowpagesforkids.com

Just select Illinois and you will get a listing of several local resources.

 

 

DIABETES

American Diabetes Association

ATTN: National Call Center, 1701 N. Beauregard St., Alexandria, VA 22311; (800) - DIABETES [(800) 342-2383]; Hours: 8:30 a.m. to 8 p.m. EST Mondays through Fridays.

www.diabetes.org

The American Diabetes Association is the nation’s leading nonprofit health organization providing diabetes research, information and advocacy in all 50 states.

 

Children with Diabetes and Diabetes123

5689 Chancery Place, Hamilton, OH 45011; www.childrenwithdiabetes.com

www.diabetes123.com

Children with Diabetes promotes understanding of the care and treatment of diabetes, especially in children. It works to increase awareness of the need for unrestricted diabetes care for children at school and daycare, to support families living with diabetes, and to promote understanding of research into a cure. Its Web site also includes a list of camps.

Diabetes123 aims to be the world leader in online diabetes care, improve the quality and reduce the cost of care for the treatment of all types of diabetes.

 

National Diabetes Education Program

One Diabetes Way, Bethesda, MD 20814-9692; (301) 496-3583;

E-mail: ndep@mail.nih.gov

www.ndep.nih.gov

NDEP is a partnership of the National Institutes of Health, the Centers for Disease Control and Prevention, and more than 200 public and private organizations. To order diabetes education materials for consumers and health-care providers, call (800) 438-5383.

 

 

DOWN SYNDROME

 Down Syndrome Home Pages

www.nas.com/downsyn

The Down syndrome WWW Page is compiled from the contributions of members of the Down Syndrome Listserv and others.

 

GiGi’s Playhouse

1069 W. Golf Road, Hoffman Estates IL 60194; Phone: (847) 885-PLAY; Fax: (847) 885-4901; www.gigisplayhouse.com

A not for profit recreation center for individuals with Down syndrome and their families.  Activities for all ages are run by volunteers and encourage individuals with Down syndrome to explore their talents and build self-esteem. Gigi’s Playhouse educates and raises awareness through activities and community involvement.

 

National Down Syndrome Congress

1370 Center Drive, Suite 102, Atlanta, GA 30338; (800) 232-6372;

www.ndsccenter.org

The mission of the NDSC is to provide information, advocacy and support concerning all aspects of life for individuals with Down syndrome. Web site features info on camps, events, resources, research, and legislative issues.

 

National Down Syndrome Society

(800) 221-4602; www.ndss.org

The mission of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in education, research and advocacy. The site lists an advocacy center, news/events, information and resources, and sponsors buddy walk events throughout the United States.

 

National Association for Down Syndrome

Phone: (630) 325-9112; Fax: (630) 325-8842; www.nads.org

They provide critical counseling and support for parents of newly diagnosed infants with Down syndrome as well as advocacy, referral and information services. In addition, NADS sponsors conferences and educational programs for parents and professionals, and conducts in-services for medical personnel and educators. The Web site features products and publications, news, discussion board and resources.

 

UPS for DOWNS

1069 W. Golf Road, Hoffman Estates, IL 60194; (847) 885-6216

www.upsfordowns.org

 

Western Suburban Parent Support Group for Down Syndrome

www.wspsg.com

Organization welcomes and supports new parents and members, provides access to resources, arranges social and fundraising events, and more.

 

 

DYSLEXIA

See also Learning Disabilities

 

 Bright Solutions for Dyslexics

www.dys-add.com

Consultant Web site featuring free newsletter, conference news, videos for purchase.

 

Dyslexia Online

www.dyslexia-parent.com/magazine

An online magazine for parents, teachers and kids

 

Dyslexia Parents Resource

www.dyslexia-parent.com

(Formerly the Dyslexic Parents Group) Features Dyslexia advice line, online assessment, news/research, discussion group, resources, free newsletter, specific course for parents, how to start your own support group, and more. Site is available in large print and different colors.

 

Dyslexia Research Institute

www.dyslexia-add.org

Web site features info on latest research, dyslexia seminars, resources, reliable links.

 

Illinois Dyslexia Association

(Part of the International Dyslexia Association)

751 Roosevelt Road, Glen Ellyn, IL  60137; Phone: (630) 469-6900; Fax: (630) 469-6810; www.interdys.org

 

National Institute of Neurological Disorders and Stroke (NINDS) Dyslexia Information Page

www.ninds.nih.gov/disorders/dyslexia/

dyslexia

Contains a lot of thorough, clear information and solid links

 

Teacher Information

www.dyslexia-teacher.com

Has info and resources for teachers and parents of dyslexic children

 

 

EPILEPSY

  Epilepsy Foundation of Greater Chicago

20 E. Jackson Blvd., Suite 1300, Chicago, IL  60604; Phone: (312) 939-8622; Fax: (312) 939-0391

www.epilepsyfoundation.org/local/chicago

The Epilepsy Foundation is a national charitable organization founded in 1968.

The organization’s mission is simple: to work for children and adults affected by seizures through research, education, advocacy, and service. Site features support groups, scholarships, events, links.

 

 

 GENERAL

 Child Development Institute

www.childdevelopmentinfo.com

Award-winning site endorsed by the APA with topics including language development, PDD, parenting, dyslexia, ADHD, autism, L/D, and child/teen health. Has a changing “current features” section.

 

  Family Village Project

Waisman Center, University of Wisconsin-Madison, 1500 Highland Ave., Madison, WI 53705-2280

www.familyvillage.wisc.edu;

www.waisman.wisc.edu

A global community that integrates information, resources, and communication opportunities on the Internet for persons with cognitive and other disabilities, for their families, and for those that provide them services and support.

 

Kennedy Krieger Institute Center for Development and Learning  

Kennedy Krieger Institute is an internationally recognized facility located in Baltimore dedicated to improving the lives of children and adolescents with pediatric developmental disabilities through patient care, special education, research, and professional training.

Phone: (888) 554-2080; Fax: (443) 923-9405; www.kennedykrieger.org

 

MUMS: National Parent to Parent Network

Julie J. Gordon, 150 Custer Court, Green Bay, WI 54301-1243; Phone: (877) 336-5333 (Parents only please), (920) 336-5333; Fax: (920) 339-0995; E-mail: mums@netnet.net;

www.netnet.net/mums

MUMS is a national parent-to-parent organization for parents or care providers of a child with any disability, rare or not-so-rare disorder, chromosomal abnormality or health condition. MUMS’ main purpose is to provide parents with a networking system that matches them with other parents whose children have the same or similar condition. Through a database of more than 21,200 families from 56 countries and 3,500 disorders, very rare syndromes or conditions can be matched.

 

National Center for Early Development and Learning

www.fpg.unc.edu/~ncedl

Focuses on enhancing the cognitive, social and emotional development of children from birth to age 8.

 

National Instructional Materials Accessibility Standard (NIMAS )

nimas.cast.org

NIMAS guides the production and electronic distribution of digital versions of textbooks and other instructional materials so they can be more easily converted to accessible formats, including Braille and text-to-speech. The Office of Special Education Programs (OSEP) has funded two national centers to further develop and implement NIMAS.

 

Special Needs Family Fun

www.specialneedsfamilyfun.com

Web site offers an online community for families, parents, caregivers and professionals, including a chat room, bulletin board, newsletter and e-Group forum. This site also offers extensive general family topics.

 

Starnet Region II

Family Fellowship and Professional Development, 2626 S. Clearbrook Road, Arlington Heights, IL 60005-4626; Phone: (224) 366-8579; Fax: (847) 278-5434

 

Yellow Pages for Kids with Disabilities

www.yellowpagesforkids.com

Select Illinois to get a listing of several state and local resources.

 

 

 HEARING IMPAIRMENT

Illinois Advocates for the Deaf/Blind & Philip J. Rock Center and School

818 DuPage Blvd., Glen Ellyn, IL 60137; Phone: (630) 790-2474; Fax: (630) 790-4893; TTY: (800) 771-1232

 

Illinois Association for the Deaf

E-mail: secretary@iadeaf.org

The Illinois Association of the Deaf (IAD) strives to promote advancement of the social, educational and economic well-being of the deaf and hard of hearing citizens of Illinois. Site features links, events calendar, and resources.

 

National Association for the Deaf

814 Thayer Ave., Suite 250, Silver Spring, MD  20910-4500; Phone: (301) 587-1788; Fax: (301) 587-1791;

TDD: (301) 587-1789; www.nad.org

The mission of the National Association of the Deaf is to promote, protect, and preserve the rights and quality of life of deaf and hard of hearing individuals in the United States. The site features resources, outreach and communication, youth leadership camps, and NAD Magazine.

 

National Information Center

on Deafness

clerccenter.gallaudet.edu/infotogo/

 

National Institute on Deafness

and other Communication Disorders Information Clearinghouse

www.nidcd.nih.gov

 

 

LEARNING DISABILITIES

 Child Development Institute

childdevelopmentinfo.com/learning/

teacher.shtml

Suggested classroom interventions for children with ADD and L/D

 

Dore Achievement Centers

(866) 784-4377; E-mail: info@dorecenters.com

www.dorecenters.com

A drug-free approach beginning with an assessment and structured daily exercises with re-assessment every few months.

 

Schwab Learning

www.schwablearning.org

This national organization was founded by Charles and Helen Schwab, who are parents of a son with dyslexia. (Mr. Schwab also is dyslexic.) The site focuses on LD and is divided into four sections: Identifying, Managing, Connecting, Resources. We found solid information, a good kids section, links to LD organizations, interactive stuff, parent survival tips, and a search listing of LD organizations by state.

 

Learning Disabilities Association

of Illinois (Chapter of LDA America)

10101 S. Roberts Road, Suite 205, Palos Hills, IL  60465-1556; Phone: (708) 430-7532; Fax: (708) 430-7592; www.ldanatl.org

A nonprofit grassroots organization whose members are individuals with learning disabilities, their families, and the professionals who work with them. LDA strives to advance the education and general welfare of children and adults with learning disabilities. Online courses for parents. Sections for resources, parents, teachers, professionals.

 

Internet Special Education Resources

www.iser.com

ISER is a nationwide directory of professionals who serve the learning disabilities and special education communities. 

 

LD OnLine

www.ldonline.org

National Web site on learning disabilities for parents, teachers and other professionals

 

Learning Disabilities Resources

www.ldresources.com

National Web site featuring wide range of resources for LD community

 

National Center for Learning Disabilities

www.ncld.org

 

MENTAL ILLNESS/BRAIN DISORDERS

A Place for Us

www.conductdisorders.com

Web site containing parent message board and links to information about conduct disorders, ODD and related issues.

 

American Academy of Child

and Adolescent Psychiatry

3615 Wisconsin Ave., NW, Washington, DC 20016; (202) 966-7300; www.aacp.org

Their members actively research, diagnose and treat brain disorders affecting children, teens and their families. Referrals are available. Publishes “Facts for Families.”

 

BPParent (BiPolar Parent)

www.geocities.com/EnchantedForest/

1068/

Site includes online forums, bulletin board for questions; focused on useful information for parents of children with bipolar disorder.

 

Federation of Families

for Children’s Mental Health

1021 Prince St., Alexandria, VA  22314-2971; (703) 684-7710; www.ffcmh.org

This parent-to-parent organization focuses on the needs of children and teens with mental disorders and their families. Features information on early intervention, education, treatment, research and transition centers.

 

National Alliance on Mental Illness (NAMI)

Colonial Place Three, 2103 Wilson Blvd., Suite 300, Arlington, VA  22201-3042; (703) 524-7600; www.nami.org

National organization Web site featuring resources, advocacy info, member magazine, legal links, estate planning, and more. Also in Spanish.

 

NAMI of DuPage County

1403 N. Main St., Suite 301, Wheaton, IL  60187; (630) 752-0066; www.namidupage.org

Local office has parent support group meetings and parent-to-parent education series for parents and caregivers. They have an excellent booklet: “Parents and Teachers as Allies: Recognizing Early-onset Mental Illness in Children and Adolescents,” $1.

 

National Mental Health Association

1021 Prince St., Alexandria, VA  22314-2971; www.nmha.org

Devoted to improving mental health and preventing brain disorders through research, public education, advocacy and services. Also in Spanish.

 

New York University

Child Study Center

550 First Ave., New York, NY  10016; (212) 263-0990; www.AboutOurKids.org;

www.nyuchildstudycenter.org

Using the facilities and resources of the NYU School of Medicine, they promote understanding, prevention, and treatment of child and teen mental health problems.

 

Child and Adolescent Bipolar Foundation

1187 Wilmette Ave., Suite 331, Wilmette, IL  60091; www.cabf.org; www.bpso.org; www.bpkids.org

A community of people who care about children and teens with bipolar disorder. The Web site’s Learning Center features many articles about early-onset bipolar disorders, interviews and research. The Web community center has message boards, online support groups and chat rooms. 

 

The Center for the Advancement of Children’s Mental Health

1051 Riverside Drive, NYSPI Unit 78, New York, NY  10032; (212) 543-5334

www.kidsmentalhealth.org

Identifies current “best practices” and reviews scientific findings for families and practitioners. If you want to find out what the best practices are, this is a good source.

 

Tourette Syndrome Association

of Illinois

 800 Roosevelt Road, Building A, Suite 10, Glen Ellyn 60137 ; 630-790-8083  www.tsa-illinois.org

The Tourette Syndrome Association of Illinois is a not-for-profit corporation organized for the purpose of informing and educating health-care professionals, educators, and the public about the nature of Tourette Syndrome. Additional purposes are to assure early and accurate diagnosis and proper treatment; to stimulate and support scientific research into the cause of the illness; to finding more effective treatments and ultimately a cure; and to be of service to patients and their families.

 

PARENT TO PARENT SUPPORT

 

Illinois Parents of Adults with Developmental Disabilities (IPADD)

health.groups.yahoo.com/group/

IPADDUnite/

The largest online support group for parents of adults with developmental disabilities. “Ask the Expert” discussions with various professionals!

 

A Better Life

www.abetterlife.org

Parents and professionals in DuPage County and surrounding area who provide information and resources to families with a member who has a developmental disability.

 

Illinois Parents

Formerly the National Parent Information Network Illinois Project)

www.illinoisparents.org

Their focus is to help parents in raising and educating their children and link parents directly to local community agencies. Lists statewide resources, telephone hotline, resources by community, etc.

 

MUMS National Parent to Parent

E-mail: mums@netnet.net;

www.netnet.net/mums

 

National Center for Fathering

www.fathers.com

Resources and connections for men including the magazine Today’s Father.

 

National Father’s Network

Children’s Development Center, 650 N. Main St., Rockford, IL 61103; Contacts: Steve Guedet, Israel Romero; (815) 965-6745; www.fathersnetwork.org

Provides support and resources for fathers and families of children with chronic illness or developmental disabilities.

 

Our Kids

www.our-kids.org; E-mail:

our-kids@maelstrom.stjohns.edu The primary mission of the Our-Kids Listserv is to provide information and support for Our-Kids. The secondary mission is to provide information and support to the caregivers of Our-Kids. The intro also specifies the rules for participation on the Our-Kids E-mail List, which is located at St. Johns University.

There is lots of good information on this site and thoughtful guidelines for seeking electronic support.

 

Parents Helping Parents

www.php.com; Their mission is to help children with special needs receive the resources, love, hope, respect, health care, education, and other services they need to reach their full potential by providing them with strong families, dedicated professionals, and responsive systems to serve them. Site features support groups, events, online information, and programs.

 

 

PRADER-WILLI SYNDROME

Illinois Chapter of Prader-Willi Syndrome Association

(Part of PWS Association USA)

(630) 508-7355;  www.pwsausa.org

E-mail: pwsillinois@sbcglobal.net

The association is dedicated to serving individuals affected by Prader-Willi Syndrome (PWS), their families, and interested professionals. It provides information, education, and support services to members. They have a toll-free number for information and referrals, an annual conference, member newsletter and much more. Web site also available in Spanish.

 

 

RETT SYNDROME

 Rett Syndrome Association of Illinois

Contact: Diane, (847) 524- 7540;

E-mail: diross62@aol.com

 

International Rett Syndrome Association

(See also contact for Illinois)

www.rettsyndrome.org

 

SPINA BIFIDA

 

Illinois Spina Bifida Association

Lisle; (630) 637-1050; Group offers advocacy, financial assistance, social programs and more.

 

 

TOURETTE SYNDROME

See Mental Health, Brain Disorders

 

 

VISUAL IMPAIRMENT

 

Spectrios Center for Visual Rehabilitation

Wheaton; (630) 690-7115; Comprehensive low-vision rehab program, training and support group.

 

Illinois Advocates for the Deaf/Blind & Philip J. Rock Center and School

818 DuPage Blvd., Glen Ellyn, IL 60137; Phone: (630) 790-2474; Fax: (630) 790-4893; TTY: (800) 771-1232

 

Illinois Parents of the Visually Impaired

(National Association for Parents of Children with Visual Impairments)

Bill Bielawski, President, Illinois Chapter, Naperville, IL 60565-1227; Home phone: (630) 357-8576

 

Lighthouse for the Blind - Chicago

1850 Roosevelt Road, Chicago, IL  60608; Phone: (312) 666-1331;

Fax: (312) 243-8539; www.thechicagolighthouse.org

Their site offers information on children’s programs, independent living, resources, and an instructional materials center.

 

National Association for Parents of Children With Visual Impairments

P.O. Box 317, Watertown, MA  02471; Phone: (800) 562-6265; Fax: (617) 972-7444; www.spedex.com/napvi

Parent directory, best educational practices, links, resources, conferences and more. Site also available in Spanish.

 

National Federation of the Blind

1800 Johnson St.; Baltimore, MD 21230; Phone: (410) 659-9314, ext. 14; Fax: (410) 685-5653; www.nfb.org

The site features a materials center, info on scholarships